All she wants for Christmas

It has been four months since our last update. I will be as brief as possible. We are awaiting Hillary’s PNH test results which have been delayed until January. She had the flow cytometry test done two weeks ago along with other extensive blood work. Hillary’s...

The tip of the spear

It has been six weeks since our last update. Hillary is afraid for her life. She remains unwell at home. I’ve documented it formally every three months with her doctors for the last six years. They kept saying she was fine. Hillary is lying beside me right now with...

Back to the future

It has been seven weeks since our last update. Hillary is in danger. We have to make impossible life decisions again.  Three weeks ago, we asked for an in-person appointment at CHEO. We just didn’t feel right after the ER fever with no explanation. We felt showing up...

Swimming out to the ship

It has been three months since our last update. I am writing to beg for your prayers again. We’re just not sure how Hillary is doing.She had been working so hard to get to the Easter long weekend. We were celebrating -– her last blood test showed normal blood levels...