Dangerously more beautiful

It has been one month since our last update. Hillary still feels compelled to share her story with openness and transparency. I checked.  Last week, she presented with an unsettling new infection. She called me into her room with her usual, verbatim, “Mom, can I show...

Brace yourself Hillary

It has been one month since our last update. I will continue to document the journey Hillary is on fighting Idiopathic Aplastic Anemia. First, the medical.  Hillary has been very well with her usual twice-per-week debilitating headaches. She vomited yesterday after a...

A reverse love letter 

It has been one month since our last update. I have no new medical information to share regarding Hillary’s condition. She continues with 1-2 sick days per week but is such a happy and joyful child. Always singing.I am writing with some news that may impact Hillary’s...

Cleared

Hillary woke up with a terrible headache and nausea on Day 4 post-COVID exposure – and it lasted all day – but it was just her usual rare, life-threatening medical condition!!!!!!!!!She is very well today, singing, dancing, and back to loving her life. We feel very...

A real cliffhanger

It has been three months since our last update. Hillary had a bone marrow biopsy and aspirate scheduled in May, but we deferred again. This time, indefinitely. Hillary’s doctor [finally] agreed that there is no need for this surgery at this time. We instead got...