by Kelly McKibbin | Jul 13, 2023 | Hillary's journey
It has been one month since our last update. I have no new medical information to share regarding Hillary’s condition. She continues with 1-2 sick days per week but is such a happy and joyful child. Always singing.I am writing with some news that may impact Hillary’s...
by Kelly McKibbin | Jun 15, 2023 | Hillary's journey
Hillary woke up with a terrible headache and nausea on Day 4 post-COVID exposure – and it lasted all day – but it was just her usual rare, life-threatening medical condition!!!!!!!!!She is very well today, singing, dancing, and back to loving her life. We feel very...
by Kelly McKibbin | Jun 13, 2023 | Hillary's journey
It has been three months since our last update. Hillary had a bone marrow biopsy and aspirate scheduled in May, but we deferred again. This time, indefinitely. Hillary’s doctor [finally] agreed that there is no need for this surgery at this time. We instead got...
by Kelly McKibbin | Feb 9, 2023 | Hillary's journey
It has been three months since our last update. Hillary had her regular home blood test and virtual appointment with CHEO two weeks ago. The results were so good, our next appointment will be in six months. This photo is of her today. Hillary’s hemoglobin grew to 121,...
by Kelly McKibbin | Nov 24, 2022 | Hillary's journey
It has been two months since our last update. We were trying to hold out for January’s scheduled blood test but Hillary has had a minor setback.Last week, Hillary became extremely lethargic, then vomited and didn’t stop all day. She tried so very hard to be normal —...
