Please don’t worry about Hillary

It has been eight weeks since our last update. We took one single photo of Hillary on the day she got her blood test results. She is beyond grateful to still be in stable recovery – hemoglobin 127, platelets 227, and neutrophils 1.8. We share her gratitude for all of...

If Hills can do it

It has been four weeks since our last update. I’m writing to share with you that which should be documented during Hillary’s journey with Aplastic Anemia (AA) and Paroxysmal Nocturnal Hemoglobinuria (PNH).We thought choosing between an upfront bone marrow transplant...

Speechless

It has been three days since our last update. We are humbled to relay Hillary’s latest blood test results. Her platelets held at 217 (previously 218), her hemoglobin 126 (from 125), and her neutrophils dipped to 1.5 from 2.6.We’re overjoyed, actually. It’s extremely...

Mitigation /ˌmidəˈɡāSH(ə)n/

It has been three months since our last update. Three months since Hillary was declared in remission with a full/complete response to immunosuppressive therapy. She is feeling the best she’s ever felt, both medically and mentally. Her doctors have decided not to wait...

Slow and steady wins the race to remission

It has been five days since our last update. Hillary had her virtual follow-up appointment with CHEO yesterday. We hadn’t seen Dr. Leibman in two years. She was the first doctor to sit us down and explain the arduous path that lay ahead. I believe the term she used...