The difference a day makes

It has been two months since our last update. I have to write. This is the happiest day of my life. Last week, we received a surprise phone call from CHEO Orthopedic Surgeon Dr. Kevin Smit – one of THE top pediatric orthopedic surgeons in the world. We’ve been on his...

Breaking the fourth wall

It has been three months since our last update.I feel privileged to write during this historic time. Thank you for your continued interest in Hillary’s journey with Aplastic Anemia, PNH, and Scoliosis. We have quantum jumped into a new reality. Alyssa no longer wears...

Paint the dark providence

Paint the dark providence It has been three months since our last update. Hillary is doing well despite her three troubling diagnoses. The summer flew by and our new family memories are humble and few. Always bittersweet. Hillary’s Aplastic Anemia remains dormant with...

Game changer

It has been one month since our last update. Our lives have changed dramatically.  Just four weeks ago, Alyssa came home from school suspecting she had scoliosis like her best friend. After examining Hillary out of caution, an urgent x-ray would reveal the same...

The sun and my daughters

It has been three months since our last update. Things are moving fast again. I will try and get through this as concisely as possible. Hillary’s last blood test revealed her hemoglobin stayed low at 119, her platelets fell to 229, and her neutrophils came back down...