Under God’s thumb

It has been three months since our last update. I note immediately that our pain is insignificant in light of the tragedies unfolding on Earth. I have finally stopped crying. I rest in a state of complete shock.  The sun keeps rising.Hillary’s journey fighting...

Dangerously more beautiful

It has been one month since our last update. Hillary still feels compelled to share her story with openness and transparency. I checked.  Last week, she presented with an unsettling new infection. She called me into her room with her usual, verbatim, “Mom, can I show...

Brace yourself Hillary

It has been one month since our last update. I will continue to document the journey Hillary is on fighting Idiopathic Aplastic Anemia. First, the medical.  Hillary has been very well with her usual twice-per-week debilitating headaches. She vomited yesterday after a...

A reverse love letter 

It has been one month since our last update. I have no new medical information to share regarding Hillary’s condition. She continues with 1-2 sick days per week but is such a happy and joyful child. Always singing.I am writing with some news that may impact Hillary’s...

Cleared

Hillary woke up with a terrible headache and nausea on Day 4 post-COVID exposure – and it lasted all day – but it was just her usual rare, life-threatening medical condition!!!!!!!!!She is very well today, singing, dancing, and back to loving her life. We feel very...

A real cliffhanger

It has been three months since our last update. Hillary had a bone marrow biopsy and aspirate scheduled in May, but we deferred again. This time, indefinitely. Hillary’s doctor [finally] agreed that there is no need for this surgery at this time. We instead got...