Hillary is going home tomorrow, after 27 days in isolation. We are ecstatic. We can’t wait to sit in the backyard. Cook. Walk up and down the stairs. The simple stuff.
Hillary received a hemoglobin transfusion yesterday and will receive a platelet transfusion tomorrow to prepare her for discharge. Thank you anonymous donors. Hillary’s neutropenia remains severe at .1 so we won’t be taking any chances with germs or infection. This is such a peculiar and rare condition — one that requires constant vigilance.
So for now, it’s just a waiting game. We continue the am/pm cyclosporine medication at home, and visit CHEO twice a week for blood tests. She will need several more transfusions, but one day, at around three months, that blood test will come back with the news that she is producing blood on her own. We’ve visualized it. Drawn the picture. Written it down as an affirmation and framed it.
Reflecting on our time here, with these emotional blog updates and our quest to increase the stem cell registry, we’ve come to believe that Hillary was chosen for this. Chosen just like the rest of the kids here at CHEO — to teach the rest of us a thing or two about life and how to live it.
The fight isn’t over. The game has just changed. We now have the home advantage.